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World Thalassemia Day – Strengthening Education to Bridge the Thalassemia Care Gap

The efforts of healthcare professionals, such as doctors, scientists, and medical staff, are also recognized on this day for their commitment to enhancing the lives of Thalassemia patients.

, results in insufficient hemoglobin production, causing the destruction and weakening of blood cells.

Thalassemia, which is typically inherited from parents to their children, was initially described in medical literature following its discovery in 1925 by American physician Thomas Cooley (2 Trusted Source
World Thalassaemia Day 2023 – May 8 History, Theme, Significance, Quotes

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).

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Thalassemia is classified into two types, alpha, and beta, with subcategories including a minor, intermedia, and major, and its symptoms include abdominal swelling, dark urine, slow growth, and weakness (2 Trusted Source
World Thalassaemia Day 2023 – May 8 History, Theme, Significance, Quotes

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).

Establishment of Thalassemia Federation

The Thalassemia International Federation established May 8th as International Thalassemia Day in 1994 in memory of George Englezos (the son of TIF’s President and Founder, Mr. Panos Englezos) and other Thalassemia patients who have passed away, as a way of commemorating their lives (3 Trusted Source
When and how was the International Thalassaemia Day established?

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).

Considering the social prejudice against the disease, organizations like Anemia Association and a small group of healthcare professionals helped raise awareness about thalassemia and support the needs of patients, contributing to the personal and social success of those with the condition (3 Trusted Source
When and how was the International Thalassaemia Day established?

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Every year since 1994, International Thalassemia Day activities bring together patients, healthcare professionals, industry representatives, and public authorities to discuss and address issues related to the disease (1 Trusted Source
International Thalassaemia Day

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The 2023 Theme

World Thalassemia Day observes a specific theme each year to raise awareness. The theme for World Thalassemia Day 2023 is “Strengthening Education to Bridge the Thalassemia Care Gap” (2 Trusted Source
World Thalassaemia Day 2023 – May 8 History, Theme, Significance, Quotes

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).

“Let us not forget how much of a struggle it is for people suffering from thalassemia. Let us support them and make this life easier for them” (2 Trusted Source
World Thalassaemia Day 2023 – May 8 History, Theme, Significance, Quotes

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Global Effort Against Thalassemia

The mission of TIF is the promotion and implementation of national control programs for the prevention and treatment of thalassemia and other hemoglobin disorders in every affected country with a vision of equal access to quality health care for every patient with thalassemia and other hemoglobin disorders across the world (4 Trusted Source
Thalassaemia Projects

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).

Similar organizations and initiatives should actively participate in education, research, and networking at the forefront to fight against thalassemia.

There are so many people out there suffering from thalassemia and they need our help. Let us step out and donate blood. Happy World Thalassemia Day to all (2 Trusted Source
World Thalassaemia Day 2023 – May 8 History, Theme, Significance, Quotes

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References :

  1. International Thalassaemia Day – (https://thalassaemia.org.cy/international-thalassaemia-day/)
  2. World Thalassaemia Day 2023 – May 8 History, Theme, Significance, Quotes – (https://guidely.in/blog/world-thalassaemia-day)
  3. When and how was the International Thalassaemia Day established? – (https://thalassaemia.org.cy/news/when-and-how-the-international-thalassaemia-day-2004-was-established/)
  4. Thalassaemia Projects – (https://thalassaemia.org.cy/what-we-do/projects/)

Source: Medindia

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